Project information
Pilot for a European Health Data Space on secondary use of health data
(EHDS2 Pilot)
- Project Identification
- 101079839
- Project Period
- 10/2022 - 12/2024
- Investor / Pogramme / Project type
-
European Union
- Other community programmes
- MU Faculty or unit
- Institute of Computer Science
- Cooperating Organization
-
European Molecular Biology Laboratory
Institut national de la santé et de la recherche médicale
Biobanking and BioMolecular resources Research Infrastructure - European Research Infrastructure Consortium
French Health Data Hub
EBRAINS
Sciensano
Finnish institute for health and welfare
Federal Institute for Drugs and Medical Devices
Direktoratet for e-helse
Danish Health Data Authority
Instituto Aragonés de Ciencias de la Salud
European Centre for Disease Prevention and Control
European Public Health Association
Hrvatski zavod za javno zdravstvo
Országos Kórházi Főigazgatóság
European Medicines Agency
Ministerio de Sanidad
The EHDS2 Pilot project is composed of 16 partners that are national hubs, ERICs or research Infrastructures, EU agencies and associations in the area of health. The partners have expertise in health data fields and transversal skills acquired in different previous projects or partnership networks.
The EHDS2 Pilot project will build and test a first version of European Health Data Space (EHDS) by interconnecting data provider platforms, either national platforms, EU agencies or research infrastructures, in a network of nodes. In doing so, the project will be able to test a user journey for creating, deploying and running health data research projects at EU level : the network will allow project researchers to query the metadata catalogs of all the nodes, to request access to selected data via a single common form and, possibly, if needed, to transfer data at one place.
To do so, the EHDS2Pilot will define and build an IT infrastructure connecting nodes (WP5) and define common standards for security, metadata catalogs, data quality and interoperability, and legal requirements (WP6, 7, 8) based on use cases (WP9).
The use cases will be selected jointly with the commission out of the 9 use cases that are presented in this document. The EHDS2Pilot
will fully operate the selected use cases in order to demonstrate the potential powerful impact of mobilizing and exploiting health
data from several countries for public health, research, innovation and policy and healthcare systems improvement. Based on this experiment, the EHDS2Pilot will provide complete evaluation of the project and build recommendations for the EC about data standards, legal requirements, costs and economic model needed to scale up the tested network.
Sustainable Development Goals
Masaryk University is committed to the UN Sustainable Development Goals, which aim to improve the conditions and quality of life on our planet by 2030.