Informace o projektu
Pilot for a European Health Data Space on secondary use of health data
(EHDS2 Pilot)
- Kód projektu
- 101079839
- Období řešení
- 10/2022 - 12/2024
- Investor / Programový rámec / typ projektu
-
Evropská unie
- Ostatní komunitární programy
- Fakulta / Pracoviště MU
- Ústav výpočetní techniky
- Spolupracující organizace
-
European Molecular Biology Laboratory
INSERM
BBMRI-ERIC
French Health Data Hub
EBRAINS
Sciensano
Terveyden ja hyvinvoinnin laitos
Bundesinstitut für Arzneimittel und Medizinprodukte
Direktoratet for e-helse
Sundhedsdatastyrelsen
Instituto Aragonés de Ciencias de la Salud
European Centre for Disease Prevention and Control
European Public Health Association
Hrvatski zavod za javno zdravstvo
Országos Kórházi Főigazgatóság
European Medicines Agency
Ministerio de Sanidad
The EHDS2 Pilot project is composed of 16 partners that are national hubs, ERICs or research Infrastructures, EU agencies and associations in the area of health. The partners have expertise in health data fields and transversal skills acquired in different previous projects or partnership networks.
The EHDS2 Pilot project will build and test a first version of European Health Data Space (EHDS) by interconnecting data provider platforms, either national platforms, EU agencies or research infrastructures, in a network of nodes. In doing so, the project will be able to test a user journey for creating, deploying and running health data research projects at EU level : the network will allow project researchers to query the metadata catalogs of all the nodes, to request access to selected data via a single common form and, possibly, if needed, to transfer data at one place.
To do so, the EHDS2Pilot will define and build an IT infrastructure connecting nodes (WP5) and define common standards for security, metadata catalogs, data quality and interoperability, and legal requirements (WP6, 7, 8) based on use cases (WP9).
The use cases will be selected jointly with the commission out of the 9 use cases that are presented in this document. The EHDS2Pilot
will fully operate the selected use cases in order to demonstrate the potential powerful impact of mobilizing and exploiting health
data from several countries for public health, research, innovation and policy and healthcare systems improvement. Based on this experiment, the EHDS2Pilot will provide complete evaluation of the project and build recommendations for the EC about data standards, legal requirements, costs and economic model needed to scale up the tested network.
Cíle udržitelného rozvoje
Masarykova univerzita se hlásí k cílům udržitelného rozvoje OSN, jejichž záměrem je do roku 2030 zlepšit podmínky a kvalitu života na naší planetě.